Welcome to
PHOENIX FOX.net
Take a deep breath, and be thankful you can....
PHOENIX FOX.net
Take a deep breath, and be thankful you can....
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Hello, my name is George Fox and this site is
dedicated to my son Phoenix. Phoenix is a 5
year old boy who was born with a rare form
of muscular dystrophy called Pompe disease.
Through this site we hope to raise
awareness about Pompe disease and also let
you follow us in our quest for a cure. As with
many diseases or medical conditions, the
main common denominator in finding
breakthroughs in science, is money. Funding
scientific research, in our case, is primary
goal number one.
dedicated to my son Phoenix. Phoenix is a 5
year old boy who was born with a rare form
of muscular dystrophy called Pompe disease.
Through this site we hope to raise
awareness about Pompe disease and also let
you follow us in our quest for a cure. As with
many diseases or medical conditions, the
main common denominator in finding
breakthroughs in science, is money. Funding
scientific research, in our case, is primary
goal number one.
Phoenix at 3 yrs old, before his tracheotomy
.
.
Education, the most important gift you can receive
in life, is the basis of the Phoenix Fox Research
Fellowship. As someone once said, you can give a
man a fish and feed him for a day or teach a man
to fish and feed him for life. Using this simple
principle we have decided that it is research that
will not only help phoenix one day but all the
millions of people in the world who have diseases
that not only control their lives but threaten them
as well...
in life, is the basis of the Phoenix Fox Research
Fellowship. As someone once said, you can give a
man a fish and feed him for a day or teach a man
to fish and feed him for life. Using this simple
principle we have decided that it is research that
will not only help phoenix one day but all the
millions of people in the world who have diseases
that not only control their lives but threaten them
as well...
The picture (above) shows the only
time, in Phoenix's entire life, to date,
that he has ever stood in a vertical
position without the assistance of
others and without the use of his
stander. The flotation suit is very
unique because it lets him "float" in a
vertical position and in this case his
feet are in the sand. So, for a brief
moment in time, he is standing like
everyone else.
time, in Phoenix's entire life, to date,
that he has ever stood in a vertical
position without the assistance of
others and without the use of his
stander. The flotation suit is very
unique because it lets him "float" in a
vertical position and in this case his
feet are in the sand. So, for a brief
moment in time, he is standing like
everyone else.
All I want is you
| "Although the world is full of suffering, it is full also of the overcoming of it" Helen Keller |
| To help fund research for children with neuromuscular disease please go to the University of Florida Foundation web-site and specify Fox Research Fellowship or click link. You can also visit Phoenix's store at the Oaks Mall in Gainesville, FL. The name of the store is Down-To-Earth, the name of the on-line store is Bella Blu and proceeds from sales go directly to research. |
Phoenix was born in Islamorada Florida in July of 2002. When he was
diagnosed, at the age of 6 mo, we decided the best thing for him was to pack
our bags, sell our house, and move to Gainesville Florida. It was Gainesville,
and the University of Florida, that seemed to offer the best hope for Phoenix.
However, in November of 2005 he got to take a trip back to his tropical
paradise with his girlfriend Taylor. They loved the boat rides, the fishing, and
the beautiful water, we can't wait to one day return home.
diagnosed, at the age of 6 mo, we decided the best thing for him was to pack
our bags, sell our house, and move to Gainesville Florida. It was Gainesville,
and the University of Florida, that seemed to offer the best hope for Phoenix.
However, in November of 2005 he got to take a trip back to his tropical
paradise with his girlfriend Taylor. They loved the boat rides, the fishing, and
the beautiful water, we can't wait to one day return home.
In May of 2006 Phoenix had his
second case of pneumonia. The
second time proved to be more
troubling. After a long battle we
had to decide to give phoenix a
tracheotomy, it saved his life. The
picture at right was the last picture
of Phoenix before his tracheotomy
was performed.
second case of pneumonia. The
second time proved to be more
troubling. After a long battle we
had to decide to give phoenix a
tracheotomy, it saved his life. The
picture at right was the last picture
of Phoenix before his tracheotomy
was performed.
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THAT.
TO STOP MUSIC. THIS VIDEO TAKES A FEW MINUTES TO
DOWNLOAD, WE CAN THANK YAHOO SITEBUILDER FOR
THAT.
| NOW OPEN! If you are in the Gainesville area please stop by Phoenix's new store. The name of the store is DOWN-TO-EARTH and it is located in the Oaks Mall next to BELK. On line, our store is called Bella-Blu. A percentage of all proceeds will go directly to Nero-muscular research here at University of Florida. Our on-line store will be coming soon. THANKS! |